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hello evry one


Last year I was diagnosis with a illness called lupus i did have to have chemo every two weeks at St. Thomas' Lupus Trust Because the lupus has damaged my kidney I am male and only 10% of man get lupus and it’s a illness that is very common. And not that many people no what it is nor what it does .Just want to know how many males hare has got lupus and how it affect there every day life
Any female that has lupus may be they can tell us how it affects their life to

that’s what made me get in to magic to get me thro every day life so i did not give up and now I enjoy magic so much and find its is makeing me fill so much better in my self not think about my illness i have

What is lupus?

. Lupus is now recognised as an important and common illness of modern times. It is a disease in which the immune system goes ‘wrong’, becomes overactive. It can affect any organ of the body. Because the symptoms can be so diverse, including for example; fatigue, rashes, allergies, depression and kidney failure it is called the ‘great mimic’.

All ages can be affected, but the commonest sufferers are young females, the peak ages being between 18 and 45. Yes, lupus still remains one of nature's grim diseases - but the outlook for most sufferers, given the correct treatment, has improved beyond recognition.

Thank you for your time

Heres my story about lupus http://www.lupus.org.uk/article.php?i=272

Matttdini

coincedently enough the bloke i look after has lupus and it can be a dibilitation disease which presently has no cure.
as mentioned each day is a lotery regarding how active the lupus is and were in the body it will strike next, any part of the body is fair game and my friend who used to help me with my wife (muncheousens & muchousens by proxy now that was fun) has had 32 thrombosis's in one leg and has suffrerd short term memmory loss, fatigue and mobility problems.
he currently takes a pharmacy of medications to combat the temprol lobe epilepsy and the sticky blood caused by his condition, he also has ibs and kidney and liver problems fortuinatly none to seriose that he needs kemo.

if there are any more questions I'm sure i can relay them for you.

Hi there magicdiscoman

Thank you very much for your time I have to take lots tablets for my Lupus as well .Iv had two kidney biopsy camera down my throat three blood transition all the test under the sun lupus has given me a disintegrating disk in my back as well as Rheumatoid Arthritis all my body go s very stiff Iv had to come up with a colour code of how I am filling for friends and family each colour is how I am filling on that day what is green amber and red because you can not see how healthy or how the person with lupus is filling. Nor how much pain they are in the only way you can tell is bye the butterfly rash show up on a very bad day that is near your nose as well as lots of fleer up on the skin and the drugs that make you fat.

I have not had any problem with my live at this time but a lot with my kidney tell your find to keep his head up and stay strong and do not let lupus bet him we are going to get though this and if he needs to talk to any one about lupus or how he is filling tell him to fill free to email or get him to tell you and may be we can help each other out because its so much easer to talk to someone that has it because we relate to each other and he is lucky to have such a good friend like you to be there for him.

Because I think he would appestats you for all your help. I lost a lot of my friends when I got the illness called lupus because I was no good for them and one does not no what’s round that Conner I do not smoke or drink and I got lupus that’s why I all way say now do as much as you can in life because before you no it your looking back on your self wish I done that or this and something’s are to late I am very strong and get on. I am going to do a charity for lupus jumping out of a plan about 13 thousand feet. I get very lonely having lupus some time I can be up all night like to night .Sorry if my spelling and grammars not good I have dyslexia.

thank you for offering your help to me that would be great if I can ask you Questions if I need them I must admit I enjoy life more now then I did yesterday its when your become ill you start to realise its not all about money you lose people as you get older I was a chef as well as working in a old peoples home as a male career but cannot do full time work now I have a little cleaning job just to pay my bit in tax and so I can save up for my magic tricks my goals are to get healthier get better with my magic and go in to child hospital to do free magic shows for them I want to give some think back. Thank you for your help

Mattdini

Lupus is a pain. No one really knows what it is, and there is no cure or particularly effective treatment (as far as I know... I'm most interested to hear that you've had chemo, that's quite a hardline treatment so I'd presume they're sure it's going to work well...!). It causes problems in all sorts problems and usually takes ages to be diagnosed because doctors need to scroll through the usual causes to those problems before they start thinking about lupus.

This is not to sound all doomy and gloomy Matt; I just mean that I understand a bit about your situation and I think it's absolutely great that you're getting on with your life and being optimistic, generous and pro-active despite it all. So many people with chronic disease could learn a lot from you... good job mate

Farlsborough wrote:Lupus is a pain. No one really knows what it is, and there is no cure or particularly effective treatment (as far as I know... I'm most interested to hear that you've had chemo, that's quite a hardline treatment so I'd presume they're sure it's going to work well...!). It causes problems in all sorts problems and usually takes ages to be diagnosed because doctors need to scroll through the usual causes to those problems before they start thinking about lupus.

This is not to sound all doomy and gloomy Matt; I just mean that I understand a bit about your situation and I think it's absolutely great that you're getting on with your life and being optimistic, generous and pro-active despite it all. So many people with chronic disease could learn a lot from you... good job mate

Nice to meet you Falshborough

You are not sounding doomy and gloomy at all you have been a great help your right about what you have said about lupus. I was in my local Epsom hospital for about 5 weeks because I just could not get up. They done all the normal test blood tests and I had drips all the drugs to get me better antibiotic in a drip strong pain kills steroids all the drug to get all my swelling done I was at the stage wear I could not put my arms in the airy nor lift my own body weight from my bed .Epsom hospital said they had no idea what was going on with me but thinks it could be lupus

Could not get out of bed so nurse did have to help me and wash me I was that bad after 5 weeks of being there they told me I had lupus and got a ambience and sent me to St themes hospital because they specials in lupus I was in there for about 2 weeks and told me what was going on sent me done to have a camera down my throat that should up me having a damaged kidney couple of days after that I was sent done for 2 kidney biopsy once they found out what was going on with my lupus and I was stabled. The doctor said I was ok to go home and need to go and see the kidney and lupus Clinic in about 3 months time. They have here at St Themes



I went and see them after was told bit about lupus told me I had lupus very bad and it was rear that we have to treat passion with chemo for lupus and that’s the next step because I was leaking protean or iron one of the two so I went every 2 weeks for chemo anthill they could get it stabile they done a great job they got me under control they given tablets for the kidney and I am on steroids and pain kills that I must not miss I got to go and see the kidney clink in about 5 weeks but have to go to my doctor for blood test every 2 weeks if I do not get any call form my doctor I no the bloods are ok if she does call the worst Iv had from her is that my white bloods sells are low but for me not to worry it ok she say she just got to keep a eye me so its going good. we are so lucky to have all the technology we have We take it for grunting other country have nothing I think like this being a Christian what I do is send you photo on here I did look to what I look like now Thank you for you conferment’s that you gave me that was very fitful thank you very much for your understanding of others that have lupus or not have lupus

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Mattdini